…wayesengomunye wabafana ababethandeka kunabo bonke ababebazi… Uma umbuza ukuthi “uyazi ukuthi ngingubani?” Wayephendula athi “Ngicabanga ukuthi ngiyakwenza!”

Njengoba siqhubeka nengxoxo yethu yohlelo lwezingxoxo lwe-Alzheimer's Speaks Radio, u-Lori La Bey kanye noDkt. Ashford, umsunguli we I-MemTrax banikeze okuhlangenwe nakho kwabo siqu ngokubhekana nabazali babo njengoba bengena esifweni se-Alzheimer kanye nokuwohloka komqondo. Sifunda ku UDkt. Ashford, ithiphu lezempilo elithakazelisayo, ukuthi imfundo nokusebenzelana komphakathi kuwukugqugquzela okubaluleke kakhulu okudingwa ubuchopho ukuze buphile. Hlanganyela nathi kuleli sonto ukuze uthole ibhulogi yomuntu siqu ngokwedlulele njengoba sibhekene nenkinga yenkumbulo.

Lori:

Yebo, kwakubi kakhulu nakumama, wayazi ukuthi kukhona okungahambi kahle. Wenza i-3 ring binder yokuthi uwenza kanjani umsebenzi wakhe, izinqubo zabaluleka ngezindlela ezihlukene zokuzivumelanisa nezimo ngokuya kwesikhathi, wayekhaliphile, ezintweni ayeziqondisa ngesikhathi ebulawa isifo i-Alzheimer's. Elinye lamaqhinga akhe alula kwakuwukugcina ithelevishini esiteshini esisodwa ngoba wayazi ngezindaba nokuthi ubani owayedlala, uma kuyisikhathi sesidlo sasemini, isikhathi sokudla kwakusihlwa, noma isikhathi sokulala. Besingazi ukuthi bekuyini isivumelwano sakhe, bekufanele kube ku-channel 4, manje nezinsuku bashintsha izinto kakhulu, ngezinhlelo, kuzoba nzima ukuthi umuntu akusebenzise ngaleyo ndlela. Emuva ngaleso sikhathi kwakumsebenzela kahle kakhulu.

UDkt. Ashford :

Kodwa akakutshelanga ukuthi wenzani?

Lori:

Cha, cha, cha...

UDkt. Ashford :

Impela. (UDkt. Ashford uqinisa iphuzu lakhe langaphambilini ekubhalweni kwebhulogi kwangaphambilini abanye abantu abane-Alzheimer kanye nokuwohloka komqondo abangeke bayisho noma badonsele ukunaka ezimpawini zabo nasezifo.)

Lori:

Kunezinto ezithile asitshela zona, lapho kungasasebenzi futhi engasenawo umsebenzi, wayehlakaniphe kakhulu ekukumbozeni. Bekumangaza izinto azenzile futhi mina mathupha ngicabanga ukuthi ukusebenzelana komphakathi kubaluleke kakhulu futhi ngicabanga ukuthi yingakho ephile isikhathi eside, kungenxa yokuthi eminyakeni yakhe engu-4 edlule, wayesesigabeni sakhe sokugcina, kwakusenokuxhumana. . Yayingajulile futhi idlangile kodwa wayezibandakanye kakhulu nabantu ababemzungezile. Wayesekhaya lasebekhulile ngaleso sikhathi futhi kwakumangalisa, uyabona ukuthi inhlansi, kimi ngithanda ukubona ucwaningo olwengeziwe mayelana nemiphumela yokuzibandakanya komphakathi kanye nesifo se-Alzheimer, siyaqala ukubona manje kodwa konke kubonakala sengathi yiba uhlobo lwekhemisi oluqhutshwa ngokwendlela yokwelapha futhi ngicabanga ukuthi ngokomuntu siqu ngicabanga ukuthi yonke isiqephu somphakathi sibaluleke kakhulu mayelana nendlela yokuphila kanye nendlela yokunakekela umuntu ngayo ngoba sonke siyazi inhlamvu encane yomlingo [A umuthi wokwelapha isifo i-Alzheimer's] kuyindlela yokuphuma, uma kuzoba khona eyodwa noma uma kuzoba noshintsho oluphelele empilweni, ngizwa nje ukuthi ucezu lokuthembisana lubaluleke kakhulu. Ingabe unomuzwa wokuthi ucezu lokuthembisana lubalulekile uma kuziwa ekuvikeleni ezinye zezimpawu zesifo i-Alzheimer's nhlobo?

UDkt. Ashford :

Ngivumelana nawe 100%. Ngicabanga ukuthi kubaluleke kakhulu, kodwa njengoba ngishilo ukuthi imfundo ibalulekile, akudingekile ukuthi uye esikoleni ukuze ufunde, uhlanganyele nabantu, ngikholelwa ukuthi ukuxhumana nabantu, ngisho nokukholelwa ukuthi ukuya esontweni kuhle kubantu [ukusiza. ukuvimbela ukuwohloka komqondo kanye nesifo i-Alzheimer's], hhayi ngenxa yezizathu ezingokomoya kuphela kodwa ngenxa yokwesekwa okukhulu nokuxoxisana nabanye abantu ibandla elizokunikeza zona noma ezinye izinhlangano zomphakathi.

Ngakho-ke ngicabanga ukuthi ukuqhubeka nalezi zinto kuwuhlobo lwesikhuthazo esidingwa ubuchopho bakho, futhi kudingeka kungabi ukukhuthazwa okungakucindezeli okujabulisayo nokukugcina uqhubeke. Ubaba wayenobudlelwane ngokwedlulele futhi ngisho nasonyakeni wokugcina wokuphila kwakhe lapho esesimweni sokunakekelwa wayesengomunye wabafana abamnandi kakhulu noma yimuphi umuntu owayebazi. Ubungangena ukuze umbone [ngenkathi ephethwe i-Alzheimer’s disease] futhi wakujabulela kakhulu ukukubona futhi ujabule kakhulu ukumvakashela. Uma umbuza ukuthi "uyazi ukuthi ngingubani?" Wayephendula athi “Ngicabanga ukuthi ngiyakwenza!” Wayesaphila impilo ecebe kakhulu naphezu kokungakhumbuli muntu. Ngaleso sikhathi lapho esecela eminyakeni engu-80 wayesenalezo zinkinga iminyaka engaba ngu-10. Lezi zinto zihamba kancane kancane, ingxenye yayo yokuphila, ngeke umise inqubo yokuguga njengoba ngitholile.