"Na kasance a farkon aikina… an dakatar da ni daga matsayi na.. ya kasance mai ban tsoro."

A wannan makon an albarkace mu da bayanin farko na hannun wani saboda a halin yanzu yana fama da gano cutar ta Alzheimer ta ƙarami. Muna ci gaba da kwafin nunin rediyo daga Sautin Ra'ayoyin da zaku iya farawa daga farko ta danna HERE. Za mu ji labarin wata mata ‘yar shekara 60 da ke kan gaba wajen aikinta a lokacin da ta kasance makauniyar ganewar rashin fahimta. Ci gaba da karantawa don gano abin da ya faru a gaba…

Mike McIntyre

Yanzu muna gayyata zuwa shirin, Joan Euronus, tana zaune a Hudson kuma matashiya ce ta fara cutar Alzheimer. Muna so mu sami hangen nesa na wani wanda a zahiri yana kokawa. Wannan kalma ce Julianne Moore amfani da kwanakin baya, game da gwagwarmaya ba lallai ba ne ya sha wahala da cutar. Joan barka da zuwa ga shirin muna godiya da kuka ba mu lokaci.

Joan

Na gode.

Mike McIntyre

To bari na dan tambaye ka game da lamarinka, shekaru nawa aka same ka?

Joan

An gano ni ina da shekara 62.

Mike McIntyre

Wanda yake matashi.

Joan

Dama, amma ni ne farkon wanda ya lura da matsaloli da yawa da kaina. Na fara samun wasu matsalolin ƙwaƙwalwar ajiya a ƙarshen shekarata 50 kuma ina ɗan shekara 60 na je wurin likitana na gaya mata damuwata ta aiko ni wurin likita. likitan fata wanda a lokacin ina dan shekara 60 ya gano ni da rashin fahimta mai sauƙi kuma ya gaya mani cewa zai iya yiwuwa a cikin shekaru biyu na kamuwa da cutar Alzheimer. Ina da shekaru 62, bayan shekaru 2, an gano cewa ina da cutar farkon farkon matakin cutar Alzheimer.

Mike McIntyre

Zan iya tambayar shekarun ku yau?

Joan

Ni 66.

Mike McIntyre

Kun zauna tare da wannan ganewar asali tsawon shekaru 4 gaya mani kadan game da yadda yake shafar ku a kullum. Shin batutuwan ƙwaƙwalwar ajiya ne, batutuwan ruɗani?

Joan

To… biyu. Na yi aiki a fannin kiwon lafiya sama da shekaru 20 kuma batun ya fara da zama babban manajan a asibiti Ni ne ke da alhakin gudanar da dukkan ayyukan shirin. Hayar ma'aikata, haɓaka, PNL, da kasafin kuɗi. Yana da wuya a gare ni, ya ɗauki ɗan lokaci kaɗan don cim ma waɗannan burin. Abin da na fara yi shi ne amfani da ƙarin bayanan rubutu.

Na yi batawa tare da kwatance da koyon sabbin shirye-shirye a wurin aiki. Wadancan sun ci gaba don haka aka kore ni daga mukamina a watan Afrilun 2011 kuma abin ya yi muni matuka. Na kasance a farkon aikina kasancewar babban manaja na asibitin asibiti. Na yi tunanin zan yi aiki har sai na yi ritaya don haka sai na ci gaba da nakasa wanda alhamdulillahi na samu hakan ta hanyar Ayyukan Medicare. Ba ni da wani ɗaukar hoto na inshora, ban cancanci Medicare ba, ni ma ƙarami ne don haka na shiga inshorar mazaje na. Yana shirin yin ritaya amma saboda “ba zan iya yin aiki ba,” dole ne ya ci gaba da aiki. Gwagwarmayar da nake yi ita ce abubuwan da suka canza yanzu, mutane za su ce "Shin kun tuna lokacin da muka yi wannan shekaru 5-6 da suka wuce kuma zan ce a'a. Tare da ɗan ƙarfafawa da ɗan koyawa zan tuna da shi. Misali a lokacin Kirsimeti na yi bankwana da surukina kuma maimakon in ce barka da Kirsimeti na ce barka da ranar haihuwa. Na kama kaina kuma waɗannan alamu ne na "Shin hakan zai faru," inda a wani lokaci ba zan tuna in ce oh Kirsimeti ba shine ranar haihuwarsa ba.

Yana da wuyar gaske, gwagwarmayarsa ce mai wahala amma tana shan wahala lokaci guda. Wahalhalun da nake tunani akan mijina wanda zai kasance kuma shine mai kula da ni, yaya wahala zata kasance. Mahaifiyata ta mutu daga cutar Alzheimer, mahaifiyata da mahaifina sun yi aure shekaru 69 kuma mahaifina shi ne mai kula da ita. Na ga irin barnar da cutar ta yi masa a karshe ta yi sanadiyyar mutuwarsa abin damuwa. Babu wani abu a wannan lokacin da zan iya yi wa kaina amma ina da imani da bege a cikin binciken Ƙungiyoyin Alzheimer cewa a wani lokaci za su sami magani da magani wanda ke dakatar da ci gaba. Amma wannan yana buƙatar bincike mai yawa da kuɗi mai yawa amma har yanzu ina da bege, idan ba don kaina ba, ga sauran da yawa waɗanda za su kamu da wannan mummunar cuta.