Ukukhathalela Abazali abane-Alzheimer kunye ne-Dementia
…ebesengomnye wabona bafana bathandeka nabani na ebesazi… Ukuba ubunombuza ukuba “uyandazi ukuba ndingubani?” Wayedla ngokuphendula athi “Ndicinga ukuba kunjalo!”
Njengoko siqhubeka nengxoxo yethu ye-Alzheimer's Speaks Radio, uLori La Bey kunye noGqr Ashford, umsunguli we I-MemTrax banike amava abo obuqu malunga nokujongana nabazali babo njengoko besiya besiba sisifo sika-Alzheimer kunye nesifo sengqondo esiyingozi. Sifunda kuyo UGqr. Ashford, ingcebiso yezempilo enomdla, ukuba imfundo kunye nentsebenziswano yentlalontle kubaluleke kakhulu ukuvuselela ukuba ingqondo ifuna ukuba nempilo. Sijoyine kule veki ngeposti yebhlog yobuqu kakhulu njengoko sijongene nesifo senkumbulo.
Lori :
Ewe, kwakumanyumnyezi nakumama, wayesazi ukuba kukho undonakele. Wenza i-3 ring binder ngendlela yokwenza umsebenzi wakhe, iindlela zesiqhelo zabaluleka kakhulu ngeendlela ezahlukeneyo zokuziqhelanisa ngokwexesha lokuxela, wayekrelekrele, kwizinto awayeziqhuba ngelixa wayesenziwa sisifo sika-Alzheimer. Elinye lamaqhinga akhe alula kukugcina umabonwakude kwitshaneli enye kuba wayesazi ngeendaba nokuba ngubani owayedlala, ukuba yayilixesha lesidlo sasemini, ixesha lesidlo sangokuhlwa, okanye ixesha lokulala. Besingazi ukuba ithini na isivumelwano sakhe, bekufanele ukuba kuChannel 4, ngoku neentsuku batshintsha kakhulu izinto, ngenkqubo, kuya kubanzima ukuba umntu ayisebenzise ngolo hlobo. Emva phaya yayisebenza kakuhle kakhulu kuye.
Ukukhumbula Usapho
UGqr. Ashford :
Kodwa akakuxelelanga ukuba yilento ayenzayo?
Lori :
Hayi, hayi, hayi...
UGqr. Ashford :
Ngokuchanekileyo. (UGqr. Ashford uqinisa inqaku lakhe langaphambili kwizithuba zeblogi zangaphambili ukuba abanye abantu abane-Alzheimer kunye ne-dementia abayi kukhankanya okanye batsale ingqalelo kwiimpawu kunye nezigulo zabo.)
Lori :
Kukho izinto ezithile awayesixelele zona, kulapho yayingasasebenzi kwaye wayengenamsebenzi, wayekrelekrele kakhulu ukuyigubungela. Yayimangalisa izinto awayezenzile kwaye mna ngokobuqu ndicinga ukuba unxibelelwano loluntu lubaluleke kakhulu kwaye ndicinga ukuba yiyo loo nto ebehlala ixesha elide njengoko wayephila, kungenxa yokuba kwiminyaka yakhe emi-4 yokugqibela, wayekwinqanaba lakhe lokugqibela, kwakusekho unxibelelwano. . Yayingekho nzulu kwaye idlamkile kodwa wayezibandakanye kakhulu nabantu ababemngqongile. Wayekwikhaya labalupheleyo ngelo xesha kwaye kwakungakholeleki, uyayibona loo ntlantsi, kum ndingathanda ukubona uphando olwenziwayo malunga neziphumo zokubandakanyeka koluntu kunye nesifo sika-Alzheimer, siyaqala ukubona ngoku kodwa yonke into ibonakala ngathi. yiba luhlobo lwekhemesti oluqhutywa ngokwemigaqo yonyango kwaye ndicinga ngokobuqu bomntu ndicinga ukuba icandelo lentlalontle libaluleke kakhulu ngokwendlela yokuphila kunye nendlela yokukhathalela umntu ngayo kuba sonke siyayazi ibhulethi encinci yomlingo [A. ichiza lokunyanga isifo sika-Alzheimer] ziindlela zokuphuma, ukuba kuya kubakho enye okanye ukuba kuya kuba lutshintsho olupheleleyo ebomini, ndiziva nje ukuba iqhekeza lothethathethwano libaluleke kakhulu. Ngaba uziva ukuba isiqwenga sothethathethwano sibalulekile xa kufikwa ekukhuseleni ezinye zeempawu zesifo sika-Alzheimer kwaphela?
UGqr. Ashford :
Ndivumelana nawe 100%. Ndicinga ukuba kubaluleke kakhulu, kodwa njengoko benditshilo ukuba imfundo ibalulekile, akunyanzelekanga ukuba uye esikolweni ukuze ufunde, unxibelelane nabantu, ndiyakholelwa ukuba unxibelelwano loluntu, ndiyakholelwa nokuba ukuya ecaweni kulungile ebantwini [ukunceda. ukuthintela isifo sengqondo esixhalabisayo nesifo sika-Alzheimer], kungekuphela ngenxa yezizathu zomoya kodwa ngenxa yobuninzi benkxaso nothethathethwano nabanye abantu oluya kunikelwa yicawa okanye eminye imibutho yasekuhlaleni.
Qhubeka ufunda-Hlala uHlala
Ke ndicinga ukuba ukuqhubeka nezi zinto luhlobo lovuselelo olufuna ingqondo yakho, kwaye kufuneka ibe luvuselelo olungenaxinzelelo olumnandi kwaye lukugcina uqhubeka. Utata wayenentlalontle kakhulu kwaye nakunyaka wokugqibela wobomi bakhe xa wayekwimeko yokhathalelo wayesengomnye wabona bafana bathandeka kakhulu nabani na owayesazi. Ubuya kungena ukuze umbone [ngoxa wayekhathazwa sisifo sika-Alzheimer] yaye wayekuvuyela ukukubona yaye uvuya gqitha ubuya kumtyelela. Ukuba ukhe wambuza ukuba "uyandazi ukuba ndingubani?" Wayedla ngokuphendula athi “Ndicinga ukuba kunjalo!” Wayesaphila ubomi obutyebe kakhulu nangona wayengakhumbuli mntu. Wayeneminyaka emalunga neyi-80 enezo ngxaki. Ezi zinto zihamba ngokuthe ngcembe, inxalenye yobomi bayo, awuyi kumisa inkqubo yokwaluphala njengoko ndiyifumene.