"Ndandikwinqanaba eliphezulu lomsebenzi wam ... ndayekiswa kwisikhundla sam..yayibuhlungu kakhulu."

Kule veki sisikelelwe nge-akhawunti yokuqala evela komnye umntu njengoko ngoku ejongene nokuxilongwa kwesifo i-Alzheimer's esisebancinci. Siqhubeleka noshicilelo lukanomathotholo olusuka kwiSandi yeengcamango onokuthi uqalise ukusuka ekuqaleni nqakraza LAPHO. Siva ibali lenenekazi elineminyaka engama-60 ubudala elalikwinqanaba eliphezulu lomsebenzi walo xa lalingaboni ngasonye kuxilongo lweMild Cognitive Impairment. Qhubeka ufunda ukuze ufumanise ukuba kwenzeka ntoni emva koko...

UMike McIntyre

Siyamema ngoku kwinkqubo, u-Joan Euronus, uhlala e-Hudson kwaye ungumguli omncinci we-Alzheimer's. Sifuna ukufumana imbono yomntu otsala nzima ngokwenene. Yayililizwi elo UJulianne Moore isetyenziswe ngenye imini, malunga nokuzabalaza hayi ukubandezeleka kwesi sifo. Joan wamkelekile kwinkqubo siyabulela ngokwenza ixesha lethu.

joan

Enkosi.

UMike McIntyre

Ke mandikubuze kancinci ngetyala lakho, ufunyenwe ukwiminyaka emingaphi?

joan

Ndafunyaniswa ndineminyaka engama-62 ubudala.

UMike McIntyre

Oselula.

joan

Kunjalo, kodwa bendingowokuqala ukuqaphela iingxaki ezininzi ngokwam. Ndaqala ukuba nemiba yenkumbulo kwiminyaka yam engama-50 kwaye xa ndineminyaka engama-60 ndaya kugqirha wam ndamxelela ngezinto ezindikhathazayo andithumele kuye. ugqirha wemithambo-luvo owathi ngelo xesha xa ndandineminyaka engama-60 wandifumanisa ukuba ndinengxaki yengqondo ephakathi kwaye wandixelela nokuba kunokwenzeka kwiminyaka emibini ukuba ndibe nesifo sika-Alzheimer. Xa ndandineminyaka engama-62, kwiminyaka emi-2 kamva, kwafunyaniswa ukuba ndinesifo isiqalo esincinci kwisigaba sokuqala se-Alzheimer's.

UMike McIntyre

Ndingabuza iminyaka yakho namhlanje?

joan

Ndingu 66.

UMike McIntyre

Uphila nolu xilongo iminyaka emi-4 ndixelele kancinci malunga nokuba kukuchaphazela yonke imihla. Ngaba yimiba yenkumbulo, imiba yokubhideka?

joan

Kulungile ... zombini. Bendisebenza kwicandelo lokhathalelo lwempilo ngaphezulu kweminyaka engama-20 kwaye umba waqala ngokuba ngumphathi jikelele we isibhedlele Ndandinoxanduva lomsebenzi wonke wenkqubo. Ukuqesha abasebenzi, ukukhula, i-PNL, kunye nohlahlo lwabiwo-mali. Kwakusiya kuba nzima kum, kwandithatha ixeshana ukuphumeza ezo njongo. Into endiqale ukuyenza kukusebenzisa amanqaku amaninzi eposi.

Bendilahlekana nendlela kwaye ndifunda iinkqubo ezintsha emsebenzini. Ezo ziye zaqhubela phambili ngoko ke ndayekiswa kwisikhundla sam ngo-Epreli ka-2011 kwaye yayibuhlungu kakhulu. Ndandikwinqanaba eliphezulu lomsebenzi wam wokuba ngumphathi-jikelele kwindawo yokunyamekela abantu abagulela ukufa. Ndandicinga ukuba ndiza kusebenza ndide ndithathe umhlala-phantsi ngoko ke kufuneka ndingene kukukhubazeka nto leyo ebulela ukulunga ndifumene oko Iinkonzo zeMedicare. Ndandingenayo enye inshorensi, ndandingafaneleki kwi-Medicare, ndandimncinci kakhulu ngoko ndaya kwi-inshurensi yabayeni bam. Wayeceba ukuthatha umhlala-phantsi kodwa ngenxa yokuba “ndingenakukwazi ukusebenza,” kwafuneka aqhubeke esebenza. Umzabalazo kum zizinto ezitshintshileyo ngoku, abantu bazothi “Uyakhumbula xa sisenza le 5-6 kwiminyaka eyadlulayo kwaye ndizakuthi hayi. Ngokukhuthazwa okuncinci kunye noqeqesho oluncinci ndiya kuyikhumbula. Umzekelo ngexesha leKrisimesi ndathi ndlela-ntle kumkhwenyana wam kwaye endaweni yokuba ndithi merry Christmas ndathi happy birthday. Ndiyazibamba kwaye ezi ziimpawu zokuba "ingaba le nto iya kwenzeka," apho ngexesha elithile ndingayi kukhumbula ukuthi oh iKrisimesi ayingomhla wakhe wokuzalwa.

Kunzima kakhulu, ngumzabalazo onzima kakhulu kodwa uyasokola kwangaxeshanye. Its suffer in that ukuhlupheka endikucingayo ngomyeni wam ozakuba nguye nongumkhathaleli wam, how hard its going to be. Umama wam wasweleka ngenxa ye-Alzheimer's, umama kunye notata babetshatile iminyaka engama-69 kwaye utata wam wayekuphela komkhathaleli wakhe. Ndabona intlupheko esisifo esimfake kuyo kwaye ekugqibeleni sabangela ukufa kwakhe okuxhalabisayo. Akukho nto okwangoku endinokuzenzela yona kodwa ndinokholo olukhulu kwaye ndinethemba kuphando lwe-Alzheimer's Associations kangangokuba ngexesha elithile baya kundifumana unyango kunye nonyango olumisa ukuqhubela phambili. Kodwa oku kuthatha uphando oluninzi kunye nenkxaso-mali eninzi kodwa ndisenalo ithemba, ukuba akunjalo kum, kwabanye abaninzi abaya kuba phantsi kwesi sifo sitshabalalisayo.